Something Dear to My Heart

For me, Cystic Fibrosis and SIDS are ones very dear to my heart, since I lost two people I loved and miss very much. Recent progress has been made on Cystic Fibrosis. 2008 has been a landmark year for the Cystic Fibrosis Foundation. Today, we have see more potential new therapies in the works that could extend the lives of those with CF than at any time in history:
Denufosol moved into Phase 3 clinical trials. Initial results after a 24-week period show that patients who took this inhaled therapy had significantly improved lung function over those who took the placebo.
The first oral drug to address the basic defect in CF moved into Phase 2 clinical trials this year. Early results show that not only is VX-770 improving the patients’ lung function, it lowered the amount of salt in their sweat, a sign that it may address the root cause of CF.
PTC124, a second therapy addressing the basic defect, also moved into Phase 2 clinical trials. In early studies, this oral drug therapy has shown that it is decreasing the frequency of CF patients’ cough.
The Foundation began undertaking its most significant efforts yet to enhance the care for the growing adult CF population through our new Program for Adult Care Excellence (PACE.)

These are all great milestones and would not have been possible without the support of generous people. While these developments are significant, the mission is not yet completed. To continue this amazing progress and see the mission truly accomplished, additional funding is needed.
Your help is needed so we can continue taking these great strides Contact the CF foundation to help cure this disease by your donation..